Claire, age 3, was diagnosed in infancy with Spinal Muscle Atrophy, which is a progressive and devastating disease. Her single mom, Amy, through tireless research, learned that a cutting edge medication that would help Claire was emerging on the horizon. Keeping Claire very active and physically engaged was essential to its success but without a vehicle that could accommodate all of her medical and mobility equipment, this task was proving almost impossible.
Fred’s Footsteps stepped in and helped this Philadelphia family purchase a wheelchair accessible van (seen below).
Claire and her equipment can now be transported safely to her many medical appointments, specialized therapies and out and about the city. Claire recently began treatment with the new medication and is making wonderful strides! As Amy delights in her daughter’s progress she tells us – “Fred’s Footsteps continues to amaze me with their generosity as I watch Claire…every single day.”