Meet Kellen

Lions and tigers and… Kellen!

Kellen and his mom, Corrine, live in Newark, Delaware. Kellen was diagnosed with a rare disease called nemaline rod congenital myopathy, characterized by muscle weakness and overall fatigue. Corrine left her job as a nurse to become Kellen’s full-time caretaker. The financial – and emotional – toll is palpable as Kellen undergoes interventions and treatments for everything from speech and nutrition to mobility and breathing.